In my journey to beating Lyme
Disease, I used many alternative/holistic treatments.
In my treatment protocol, I started out using oral
and eventually IV antibiotics for several years, using alternative/holistic
treatments occasionally. Eventually, after a few years, I transitioned to all
holistic treatments. I think both types of treatments - antibiotics AND holistic treatments - were essential for
me, personally. Everyone is different, but we can all learn a little something
from one another and it is always nice to be aware of other options if you feel stuck. This post is not meant to advocate for any type of treatment as each person heals differently; rather, it is to present some holistic options for you if you are feeling stuck in treatment, considering holistic options, or can no longer take or tolerate antibiotics.
After a few years of antibiotics, I was forced
to stop them because my organs were being damaged by the antibiotics and
my stomach could no longer tolerate them. I was DEVASTATED when I had to stop
IV Doxy. After so many years of treatment, I was FINALLY starting to feel a bit
like myself again. And then I had to stop. I had no choice. My LLMD and I
both knew that it was not possible to risk further damage to the organs that
were suffering.
My health declined after I stopped the
antibiotics, but I was forced to find and utilize many holistic
treatments. Looking back, I am actually glad I was forced to stop the
antibiotics. My body - unbeknownst to me - was ready at that point in my treatment to take over and
heal itself with the help of more gentle holistic treatments. I am not a fan of
the practice Western medicine has of pushing drugs down patients' throats when not needed, BUT
with Lyme, we all know how incredibly devastating the disease can be. This is one disease where Western drugs are often needed, and where, unfortunately, mainstream medicine tells us not to take them. And insurance will not cover them! The irony!
I was too
ill to survive without antibiotics by the time I was diagnosed and have NO DOUBT they were integral to my recovery. So this post is not to condemn anyone for using antibiotics. Antibiotics saved my life and were necessary for my
healing! However, if your body is ready (or if you cannot
tolerate antibiotics like many Lyme patients), there are many
alternative/holistic treatments you can consider.
For me, after a few years of antibiotics, the holistic treatments I did helped me get to complete wellness.
I won't lie - none of them are cheap. But
treating Lyme Disease is still, sadly, a very expensive ordeal. I went into
massive debt paying for these (as did my parents), and am still paying for it.
But there is no price on health. They were all worth it to be back to healthy
again.
Alternative/Holistic
Treatments Options
(First a list of treatments I used)
Auto Blood Therapy: (note,
I did a combination of treatments in succession, specifically auto blood
therapy for 8 weeks, then IV homeopathic detox and UVB for several weeks, then
IV hydrogen peroxide, then IV lipid exchange), under the guidance of a
holistic doctor in NYC. Email me if you'd like more information on this doctor.
IV Ozone Therapy: Oxygen
therapies involve the use of oxygen and can be used in various forms to promote
healing and to destroy pathogens in the body – often used in combination with UBI or UVB
(Ultraviolet Blood Irradiation) for most effective results. For me, IV
ozone - especially paired with UBI - was a great 'clean up' of leftover Lyme,
co-infections, opportunistic infections (like chronic viruses or mycoplasma),
etc. Ozone can stimulate circulation, increase tissue oxygenation,
facilitate cellular immune function, and assist in detoxification. I often
experienced a very mild herxheimer reaction in that I got quite tired for a day
or two. Sometimes I just felt great with no herxheimer, but I always felt
better at some point in the week following treatment. More about UBI:
UBI is a therapy where blood is taken out of your body, exposed to ultraviolet
UVC light, and then reintroduced into the body. UBI is effective in treating
persistent viruses, has anti-inflammatory effects
and powerful anti-infection properties, and stimulates the immune
system. UBI was first used on humans in 1928, when it was first used in Germany
on a woman dying of sepsis and cured her in 2 days.
IV Hydrogen Peroxide Therapy: I used
this as part of a protocol that involved many other treatments (see "Auto
Blood Therapy" above). Intravenous hydrogen peroxide can be used as a
natural anti-microbial. Once in the body, the hydrogen peroxide breaks down
into various oxygen subspecies that contact anaerobic viruses and microbes. The
hydrogen peroxide then oxidizes the cells of these viruses and microbes while
leaving the healthy cells alone.
IV Phosphatidyl Choline (aka
IV Lipid Exchange): I used this as part of a protocol that involved many
other treatments (see "Auto Blood Therapy" above). Each IV Lipid
Exchange was followed by an IV glutathione infusion. This therapy can
improve the neurological symptoms caused by the progression of Lyme disease.
Phospatidyl choline makes up most of the cell membrane, and,
therefore, can help regenerate the structural and functional integrity of
cells, especially in the brain.
High dose IV Vitamin C (Myers Cocktail) Therapy:
builds immunity and helps fatigue. I also used these as a detoxification by
doing them twice weekly at home when I had a picc line and was infusing IV
antibiotics. There are also claims that High doses of Vitamin C (the highest dose I ever took was 40,000 mg at once) kills Lyme Disease. If you do need the information for an infusion pharmacy that
specializes in Lyme Disease and mails IV meds as well as Myers Cocktails, please email me. When I no longer had a picc line, it was
much more expensive to go into a doctor’s office and have these treatments, but
I still continued as needed. High doses of Vitamin C are also good for viruses.
Biontology: Light Therapy (a.k.a. Applied
Biophoton Science): visit the website for more
information on this therapy. If you are in the Bay area i can give you the
number of the practitioner who I worked with, who is fantastic. She cured
herself of Lyme Disease with this therapy, but she doesn't take that many new
patients. I found this treatment incredibly powerful for helping me heal
EVERYTHING leftover from Lyme - adrenal, thyroid, and other hormone issues, GI
issues, sleep/endocrine disruptions, toxicity, liver/gall bladder back up,
kidneys, anything that was an issue that day, the machine picked it up and
cleared it! Wish I had discovered this earlier to do alongside my other
Lyme treatment.
Herbs – Byron White line: I used herbs for about 6 months for
co-infections (I needed a break from antibiotics as my system had become too
toxic for me to handle them). Then I worked my way back onto antibiotics. Later
I would use the herbals as needed. Byron White has specific herbs for Lyme and
co-infections, along with other things like H.Pylori, Mycoplasma, etc. They are
immune modulating herbs so even though I have no Lyme or co-infection symptoms
anymore, I now take a low dose of 2 of the formulas just to keep my
immune system in good shape. There are many other herbs besides the Byron White
line that you can use. I found many of these to be very effective for me, and
my naturopath worked with Byron White directly, so I was steered towards his
herbs primarily.
(Here is a list of treatments I did not try but have heard positive feedback about from other Lyme patients)
Rife Machines
Far Infrared Saunas
Hyperbaric Oxygen Therapies: Hyperbaric Oxygen Therapy (HBOT) is the use of
intermittent, high-dose oxygen as a drug. By giving pure oxygen in a
pressurized chamber, HBOT delivers a massive influx of oxygen to virtually
every area of the body. This is true even for areas of poor blood
flow. Fights infection by creating a hostile environment for bacteria
which thrive and cause infection in the absence of oxygen. There are a few
clinics whose directors I have spoken to who have told me about the great
results of HBOT. There are possible side effects that you should be aware of,
as there can be with any treatment.
I never got around to trying
these last 3 treatments for many reasons, but feel free to post about your
experience here in the Comments Section.
This is by no means a complete list of all
the holistic treatments for Lyme Disease. There are many other holistic
therapies, including but not limited to things like frequency specific
micro-current, biomat, etc. Note, I have not included things like
supplements and holistic practitioners I worked with (IMT, quantum energetics
healing, craniosacral) because then the list would never end. These
were amazing and very supportive treatments while I was ill, and if
you live in the Bay Area, I am happy to share the names of these practitioners
if you email me. You can reach me at monamorphosis@gmail.com.
"Life isn’t about waiting for
the storm to pass; it’s about learning to dance in the rain." ~
Unknown
Disclaimer: Nothing in this post or site should be
construed as medical advice. These statements have not been evaluated by the
Food and Drug Administration. None of the claims made above
are intend to diagnose, treat, cure, or prevent any disease. Information
provided here is not a substitute for professional medical advice.
Each individual should consult with his/her practitioner or doctor to work out
a treatment plan that is right for them.
*Apologies about the strange font; it is not very readable but I have not had been able to figure out how to fix it!
Thank you so much for sharing your story.
ReplyDeleteWe all need to hear good stories to help us! Yes we all do need to learn how to dance in the rain!!
Thanks Mona. I've been reading your blog for a couple of years, I think. I did oral ABX for 2.5 years and suddenly went into a kind of remission. It lasted a couple of months but I've never gone back to that very sick place where I once was. I still have good and not so good days but I bounce back right away if I over do it. I may try a couple of things here to help boost my system.
ReplyDeleteI'm very interested in the UBI therapy and wonder why it's not used more? It seems like the answer to many blood problems. My father had sepsis a couple of years ago and it was a long haul to get better and he never really fully recovered. I'm thinking there's a cost issue with the UBI. It's always about the $$ though.
Thanks for sharing.
- Bea
PS - The author of the lovely quote at the end is Vivian Greene.
ReplyDelete- Bea